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A.R.K. PROGRAMS & SERVICES

PROJECT A.R.K. (Aids & Resources for Kids) MONTHLY Activity Calendar

PROJECT A.R.K. Program & Service Information

Being diagnosed with a life-threatening or chronic illness is a traumatic experience for a child as well as for parents and siblings.  Treatments to fight diseases such as cancer, HIV/AIDS, sickle cell, renal disease, hemophilia and immunologic disease can contribute to psychological and physical issues for children who fight a daily battle against disease as well as for survivors of disease and family members.

If your child is diagnosed with a life-threatening or critical illness and they, or family members, are experiencing one or more of these issues, please contact us to learn more:

Fear Memory Loss
Anxiety Inability to Concentrate
Anger Poor or Declining School Grades
Physical or Emotional Overreactions Depression
Behavior Changes Irritability

Please call NVCCF at 702.735.8434 to find out more about the implications of living with a childhood chronic illness and how we may help.

Camp Cartwheel – This overnight and medically supervised summer camp is one of the largest camps in the western United States and offers four days of outdoor activities at no cost to over 200 critically ill children and their siblings ages 5 to 17.

SEEK Teen Retreat – The teen retreat, led by an LCSW, is a therapeutic, invite only annual event which creates an environment for self-reflection, personal growth, team building, and enhances self-esteem for teen patients and their siblings.

Danny Gans Memorial Champions Run for Life Hosted by Donny Osmond – This annual event
gives the community, friends and family the opportunity to individually
honor and recognize courageous children who fight illnesses daily and
those who have won their battle against disease.

Bravery Heart Profiles of Courage Beads – The program provides
specially designed beads, representing a variety of procedures, to
document a child’s journey as they fight a daily battle against disease.
What quickly becomes a heavily beaded necklace is worn as a
“badge of courage”.

Brett Torino Foundation Education Services – Named after its donor, this program gives children the opportunity to continue their education while in treatment, recovery, and post treatment. Services include inpatient and bedside instruction, and inpatient classroom with a full-time teacher along with outpatient services including school re-entry, transitional services, educational assessment to identify areas of need, and advocacy to provide support and facilitate school meetings:

  • Lean on Me: Kidz Supporting Kidz – Shane and Valerie, NVCCF’s puppets mastered by volunteers, visit area schools educating classmates and teachers regarding the challenges of a life threatening or chronic illness that their ill classmate faces each day.
  • Back to School In Style – School supplies, a new school outfit, and a special lunch highlight the first day back in the classroom after missing 30 days or more of school due to illness.
  • Tutoring – Private and group tutoring, at sites throughout the Las Vegas Valley, is provided for all ill children, their siblings, and children of parents diagnosed with cancer who need extra help with school work due to diagnosis and its ramifications.
  • Brett Torino Foundation Classroom– NVCCF created the first inpatient classroom in the state of Nevada in 2008. Facilitated and operated by NVCCF, the inpatient classroom is located at Sunrise Children’s Hospital and provides children, grades kindergarten through 12th, with direct instruction from an NVCCF teacher in a classroom setting along with education services provided at other area hospitals.
  • C.A.P.S. Ceremony – The Annual C.A.P.S. Ceremony celebrates students who have shown Courage, Achievement, Perseverance, and Success in education. This memorable event includes a presentation of honors and awards highlighting special achievements as well as a celebration with students, families, teachers, tutors and participants. The ceremony represents a foundation for personal and social growth as students’ progress through education.

Jim Bell Transportation Program – Patient transportation to and from doctor appointments, treatments, and hospital visits are available and based up financial need.

Counseling – Counseling services are provided by licensed therapists
to all children, siblings and family members. These services include
individual, family and group interventions.

Engelstad Family Foundation Gifting Program – Based upon
review, emergency funding is provided to families, in financial crisis
due to diagnosis, needing support for housing, utility payments,
transportation, food, and basic living essentials.

SEEK Teen Group – Led by an LCSW, this group meeting facilitates social support, communication and other social skills and aims to reduce isolation for teens that have been diagnosed with a critical illness and their siblings ages 13-18.

 Sickle Cell Empowerment Team – Meets monthly to improve the quality of life for children and their families affected by Sickle Cell to enhance the sickle cell community’s knowledge, awareness and understanding, all while empowering sickle cell youth to self-advocate.

Kool Kidz Workshops – These workshops welcome diagnosed children, their siblings, and children with diagnosed parents who are all impacted by disease.  Therefore, these workshops are held every 2nd and 4th Saturday and are overseen by a licensed professional and consist of healing arts, discussions and activities to provides emotional support and teach expression in a positive manner.

Family Food Pantry – The shelves of this room are stocked with donated non-perishable groceries and day to day basic living needs, cleaning supplies, and toiletries for families in active treatment and in financial crisis who need immediate support.   Access to food pantry is by appointment only.   Food donations are accepted year-round.

Giving Space – The Giving Space is a favorite of every pediatric
patient and their siblings. The Giving Space filled with school supplies, new
toys, hats, blankets, books, arts & craft items, nail polish and make up
for teens and more.

Holiday Adopt-A-Family – Each year, NVCCF identifies families in
need during the holiday season. NVCCF provides a structured way for
individuals, companies, and businesses to purchase and donate gifts
to a family with an ill child. Donors may stay anonymous or be active
in delivering gifts to families.

The Caring Place – NVCCF’s adult services program offers healing arts and wellness services to adults with cancer, their children, and their caregivers as well as to NVCCF patients and their parents.  Services include massage, reflexology, meditation, yoga, support groups and more.

Mom’s Day Out & Dad’s Day Off – Parents who need a little extra
tender loving care are invited for an exclusive day out which includes
pampering, meals, and plenty of surprises along the way including
limousine transportation and gift bags for those who participate.

Sperm Banking – Licensed Social Workers assess families and help facilitate sperm banking prior to starting treatment. In coordination and conjunction with Cure 4 the Kids and the Las Vegas Fertility Center, NCCF facilitates the banking and storage free of charge to the families for the initial 2 years.